SWAN UK is the only dedicated support network in the UK for families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed. The aim of SWAN UK is that every family gets the support that they need, regardless of whether or not they have a diagnosis. Their work involves: developing and supporting the undiagnosed community. They focus on building and nurturing a community for families of children with undiagnosed genetic conditions, by providing high-quality information and services. This ensures that families have access to the best possible support and information. raising awareness of syndromes without a name. They work to increase public and professional understanding of the unique challenges that families face. SWAN UK community membership is free of charge, and registration is quick and easy. For more information, please follow the link to visit their website. We're sorry but <%= htmlWebpackPlugin.options.title %> doesn't work properly without JavaScript enabled. Please enable it to continue.
