Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK, and their members and the people they support are at the heart of everything they do. They advocate for fast and accurate diagnosis, good quality care and access to the best treatments. They actively support progress in research and engage with decision makers and the public about the challenges faced by the community. They run two long-standing projects: Rare Disease UK: A campaign focused on making sure the new UK Rare Diseases Framework is as successful as possible, and to ensure that people and families living with rare conditions have access to a final diagnosis, coordinated care and specialist care and treatment. SWAN UK: The only dedicated support network in the UK for families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed. For more information, please follow the link to visit their website. https://www.facebook.com/GeneticAllianceUK Information about Rare Disease UK. https://shropshire-cd.directory-platform.com/kb5/shropshire/cd/view.page?record=Tz6GcXWOaGo Information about SWAN UK. https://shropshire-cd.directory-platform.com/kb5/shropshire/cd/view.page?record=nIqTEmXm8o4 Free Availability information Monday – Friday 9:00 am – 5:00 pm We're sorry but <%= htmlWebpackPlugin.options.title %> doesn't work properly without JavaScript enabled. Please enable it to continue.
